CIITIZEN
2023-2024 Campaign 4CASK Goal: 60 CASK cases onboarded with Ciitizen
Let your medical records do the talking when you sign up for the Invitae’s Ciitizen Rare Patient Network. This is a great opportunity for the CASK community to rapidly gather natural history data with no extra clinic visit or medical exam required. It takes only a few minutes!
Currently available to US Patients only (Australia and Canada to be available next). Keep scrolling to watch a webinar with the Rett Syndrome Research Trust, to see their families’ perspectives.
Video - Ciitizen Results with Rett Syndrome Research Trust
In this video, you can see how the Ciitizen data services have added value to the research for Rett Syndrome.