CITIZEN HEALTH
Let your medical records do the talking when you sign up for the Citizen Health platform. This is a great opportunity for the CASK community to rapidly gather natural history data with no extra clinic visit or medical exam required. It takes only a few minutes!
Video - Citizen Health Webinar with CASK Gene Foundation
Our Citizen Health webinar recording is now available! Here’s a brief recap of the webinar, and what you’ll see in the recording:
Kristina Hone:
shares her daughter’s ultrasound imaging as viewed in the Citizen Health platform
talks about how this platform has helped improve her life and her daughter’s care
Kate Haldeman:
summarizes the history, purpose, and power of the Citizen Health mission
demonstrates how citizen health de-identified data can expedite research
explains the current “share for rare” recruitment challenge and sweepstakes incentive
Mequel Bunch:
details the security measures for the platform and research study
demonstrates the onboarding process and shows how to contact her via chat
shows how you can choose to share your contact info with both CASK Gene Foundation and Project CASK
Dr. Konark Mukherjee, PhD, MBBS
shares his thoughts on what Citizen Health is offering
explains how this real world data can help focus CASK research and improve his work
Video - Citizen Results with Rett Syndrome Research Trust
In this video, you can see how the Ciitizen data services have added value to the research for Rett Syndrome.