GETTING STARTED
What We Know
As a foundation created by parents of those with CASK gene disorders, we are putting our collective experiences together to understand the various ways this can impact each child. It is our hope that researchers can benefit from this information as much as we do. Click here to see what we know anecdotally, and view our latest data graphs from our patient registry here..
Keep in Touch
It is our hope to connect those with CASK gene disorders to new possibilities, by working together as a global team. We have a contact registry, so that we can meet and begin collaborating with CASK families, and their support community - including our valued researchers! Click here to add your name and contact information to this registry, and gain access to our private providers professional network.
Existing Research
We want to learn all we can about the CASK gene, and are creating a library of news and research articles for our CASK community to reference. If you have or know of a repository of CASK gene related information online, please contact us to let us know where we can find and link to that information. We also welcome advice and corrections, if any of our CASK gene related information is mistaken.
Tell Us About Your Work
We recognize that the experiences and records kept by our CASK families and their medical teams is an asset, and we eagerly look forward to connecting researchers with the data they need to progress. Click here to fill out a form to notify us of a new study, so we can review the requirements and help recruit participants.
