CASK FAMILY SCHOLARSHIPS

Established in 2020 as a #GivingTuesday initiative, the CASK Family Scholarships aim to provide financial assistance to families affected by CASK gene disorders. These scholarships help cover medical expenses, therapies, equipment, and other essential needs that insurance may not fully cover.

Thanks to the regular contributions from donors to the 4CASK fundraising campaign, this program is now funded year-round. We are especially grateful for a generous sponsorship from the annual Friends of Sophia Marie Golf Outing, which enables us to extend this vital support to more families worldwide.

Scroll down to access the application or read thank you notes from the families!

Thank you to all the sponsors and donors that have contributed to the CASK Family Scholarship fund over the years!

Thank you from Emmy’s family:

“Emmy received the CASK diagnosis in December 2020 at about 20 months of age. We had known since before birth that she had Spina Bifida, but adding the CASK diagnosis was uncharted territory with very little information. She is actually the only known person to have both CASK and a Neural Tube Defect, making our situation even more unique in a few different ways. The CASK Scholarship allowed us to access an outside of the box therapy tool, the Rezzimax, to provide Emmy with a form of therapy we could use at home across a variety of her needs. Access to the funds from the scholarship made this possible, and we are so grateful to the donors who continue to contribute to ongoing funding for scholarships, research, accessibility, and awareness for CASK.”

Thank you from Indie’s family:

“We were so very grateful to have been recipients of a CASK Gene Foundation scholarship! While our daughter Indie receives some therapy services through the state, we have found that these services fall short in meeting all of her needs. Paying out of pocket for private services however quickly adds up.

Receiving the CASK scholarship allowed Indie to continue receiving feeding therapy throughout her g-tube transition which has been invaluable. Indie LOVES mealtime with her tube as we now have strategies for her to play, taste, and practice oral skills while being fed. We hope that one day she will have the chance to transition back to oral feeding!”

Thank you from Liam’s family:

“We are so grateful that we were awarded a 2022 Cask Gene Foundation Scholarship. We were able to buy a vibration board for Liam. It allows his muscles to relax and his feet to settle in flat. It also helps with his sensory integration. We are so excited to see how this will help his future. ”